Tuesday, October 11, 2016

Explaining Celiac Disease to Children: The Adventures of Celia Kaye

Did you know that an estimated 3 million Americans live with Celiac Disease? The numbers are astonishing. After I was diagnosed, I have experienced some of the ignorance and misinformation that surrounds Celiac Disease and other forms of non-Celiac gluten sensitivity. I believe it is important to spread awareness of these medical problems, because Celiac Disease is a serious autoimmune disease.

Dealing with a Celiac diagnosis or similar gluten intolerance is a huge lifestyle change. It is hard to find foods to eat that are both safe and healthy. Celiac Disease is complex, affecting all areas of the body. I deal with joint pain, nutritional deficiencies, secondary food allergies, pre-osteoporosis, just to name a few. Being gluten free really is only the beginning.

When entrepreneur Kaitlin Puccio was diagnosed with Celiac Disease, she too recognized the need for correct and complete information. Her answer to this was creating a website called CeliaKaye.com. Bringing her experiences with Celiac Disease to the table was extremely helpful in creating a website where visitors can get wholesome information on gluten free living, exercise, and lifestyle changes that help improve one's mindset.



Ms. Puccio has also written a book called The Adventures of Celia Kaye, which is follows a young girl who is living with Celiac Disease. Celia avoids sharing the real reason she can't eat certain foods with her friends. She eventually learns that she doesn't need to avoid sharing her struggles with friends.

I really enjoyed sharing this book with my children because it explained my condition a little better to them since it was through the eyes of a child. We also have a child with suspected Celiac Disease, so he was able to better understand what happens to his body. It's one thing to suffer as an adult, but even harder as a child who doesn't need to be in pain.

The Adventures of Celia Kaye is available for purchase on Amazon.com.

About Kaitlin Puccio:
Ms. Puccio is the creative force behind Circles (Winner, Best Short, Hoboken International Film Festival; Nominee, Best Director, 30 Under 30 Film Festival); Philosopagus, a literary website dedicated to bridging the gap between analytic philosophy and creative writing; and Bent Frame, LLC, a film production and publishing company that delves into the world behind the glass and considers what lies beyond from a new perspective. Puccio defines her personal brand as one that is derived from a renaissance approach to the world: “I am always open to cross-training of the mind. I studied philosophy and French in college at NYU, and I make films. I founded Bent Frame, a production and publishing company. I write about health and entrepreneurship, and also write fiction, poetry, children’s books, and I love to collaborate with like minds because it allows me to explore and expand my own capacities.”


Disclaimer: I received a free copy of Celiac Kaye to review. Some posts contain affiliate links which helps support the costs of running this blog.

10 comments:

  1. I had no idea that there were books like this. What a great thing!

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  2. This sounds like a great book! We're fortunate that our son doesn't have any sensitivities now, and he hasn't questioned eating habits of his friends. I know the questions will come, though, and we'll want him to treat others with sensitivity and kindness. I'll definitely have to check this out.

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  3. I love that there are books like this for kids. Some situations are so hard to explain and relate to. How wonderful!

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  4. What a great way to explain this to kids, I have no idea even what it is fully. Glad there are books to help, I find books really help children to learn easier about a tough topic.

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  5. I had heard of Celiac disease before but I never knew exactly what it was. It's so important to explain the issues that people face, to children. I for one have depression and I wish there was a book like this that explained Mental Illness to children!

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  6. Thank you for the awareness! This is the first time I hear of Celiac Disease.

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  7. This is the first time I heard about this disease. This is a lovely idea to share about it.

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  8. I know a few people with Celiac disease and the food challenges they face. The book is a terrific idea as an introduction to helping kids understand it.

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  9. Oooo what a great book!!! This would be a hard topic to talk about to kiddos since there is a lot of info for them to understand.

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  10. What a great way to explain this!! I know my kids struggle sometimes when learning about new medical things.

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